Author
KARAGOZ, Sema
Publication Place
Hits University -
Hits University
Subject
Leukemia, Psychology, Religious, Spirituality
Type
Book
Language
ara,eng,tur
Digital
Yes
Manuscript
No
Library
Leitir Library
Library Asset ID
ISSN: 2757-6949, EISSN: 2757-6949, DOI: 10.14395/hid.951355
Record ID
cdi_doaj_primary_oai_doaj_org_article_814e7ad1e0a44bf3a7f8e6e130a56f7f
Library Location
Open Access Resources_DOAJ
Notes
A diagnosis of pediatric cancer is a source of intense stress for both the child and all family members. Suddenly, the entire family's plans are disrupted. Now new plans and challenges await the family. Adjustment problems within the family, financial difficulties, increased care needs, changes in social relations, and long-term hospitalizations are some of the problem areas faced by families. While families try to adapt to these stressful problems, they also activate their coping attitudes. When examining these coping attitudes, it is seen that there is no specific study on the position of religion in our country. This research is expected to contribute to the literature in this respect. In this context, the main purpose of the research is to determine the meaning that parents of children diagnosed with leukemia attribute to leukemia, the problems they experience, the religious coping strategies they use when struggling with problems, and what can be taken into consideration in the psychological support services to be offered. Interview technique was used within the scope of qualitative methods to determine the experiences of parents of children diagnosed with leukemia in the remission process. Among the interview techniques, semi-structured interviews were included. Before creating semi-structured interview questions, studies conducted with parents of children diagnosed with leukemia were examined. Care was taken to ensure that the questions prepared were open-ended, non-directional and simple. Purposeful sampling method was preferred in determining the study group. Snowball technique, one of the purposeful sampling types, was also used. Criterion sampling was also used. Because children diagnosed with leukemia were required to be in the remission (recovery) process for at least two years. In the first place, a family in the area who had experienced this process was reached. Later, communication was provided with other parents through guidance. Each participant was first interviewed on the phone and given information about the research. Later, an average of 45 minutes of interviews were held with the parents who expressed that they would volunteer. It was observed that the parents went through quite complex processes when they learned the diagnosis of leukemia. During this time, especially intense sadness, shock, denial, anger and helplessness manifest themselves. It has been determined that parents attempt to find explanations for why their children have leukemia after learning the diagnosis. These statements made by the parents themselves: It has been observed that it is closely related to the attitude of the parents to the child, the disease history of the child and the family, the developmental characteristics of the child and living conditions. An important point that draws attention in the parents' statements is the attitude of blaming themselves or their spouses. Parents do not offer an explanation for the child's leukemia disease based solely on their life experiences; Beyond this, they have also been found to have a spiritual meaning. It was determined that the meaning that the participants attributed to this disease was predominantly related to the Islamic religion. The concepts of test, warning, punishment, fate, duty and trust have come to the fore. While it was observed that forms of meaning such as testing, warning, and duty were supportive, the idea of punishment was observed to increase internal conflicts. It was observed that the parents participating in the research encountered many difficulties from the moment the first symptoms of leukemia began to appear. With the start of treatment, parents are faced with unfamiliar terminology and various needs. They also experience difficulties such as financial problems, difficulties in social relations, incompatibility within the family, distance, and labeling. It has been determined that parents put their individual and environmental resources into action to combat all these difficulties. Parents resort to both personal resources such as engaging in daily relaxing activities, experiencing religious activities, and being motivated by the child's presence, as well as external sources such as close relatives, healthcare teams, and social aid organizations. It has been observed that resorting to religious practices has an important share for parents in the process of coping with difficulties. It has been determined that parents mostly resort to prayer among religious coping activities. In addition to prayer, it has been observed that prayers such as reading the Holy Quran, praying, and visiting mosques and tombs are also supportive for parents. As a result, it has been determined that religion has an important position for the participants both in making sense of the leukemia disease and in coping with the difficulties brought by the treatment process. It is important to consider religious and spiritual elements in the support activities to be offered to families from the first day of diagnosis. The diagnosis of pediatric cancer is a source of intense stress for both the child and all family members. The plans of the whole family are suddenly ruined. Now, new plans and challenges await the family. Familial adaptation problems, financial difficulties, increasing needs for care, change of social relations and long-term hospitalizations are some of the problem areas that families face. Families resort to some coping approaches when trying to adapt to these stressful problems. When examining these coping attitudes, it has been determined that there is no study on the position of religion in our country.In this context, the main purpose of this study is to determine the meaning that the parents of children diagnosed with leukaemia attribute to leukaemia, the problems they experience, the religious coping activities they use while dealing with problems and the points that can be considered in the psychological support services to be provided.Interview technique, which is one of the qualitative methods, was used in order to determine the experiences of the parents of children with leukemia in remission. Among the interview techniques, semi-structured interviews were used. Before creating semi-structured interview questions, studies were conducted with parents of children with leukemia were examined. Care was taken to ensure that the questions prepared were open-ended, non-leading and plain. Purposive sampling method was preferred to determine the research group. Among purposive sampling methods, the snowball technique was utilized. Criterion sampling was also used because the children diagnosed with leukemia were required to have been in remission for at least two years. First of all, a family that was experiencing this process was reached in the environment. Then, through guidance, communication with other parents was ensured. Each participant was first interviewed on the phone and informed about the research. Then, interviews lasting an average of 45 minutes were conducted with parents who stated that they would volunteer. It was observed that parents experienced quite complex processes when they learned about the diagnosis of leukaemia. In particular, intense sadness, shock, denial, anger and despair manifest in this period. It was determined that, after learning about the diagnosis, parents attempted to find explanations for why their children had leukemia. These self-made explanations by the parents were observed to be closely related to their attitude towards their child, the disease history of the child and the family, and the developmental characteristics and living conditions of the child. An important point that draws attention in the statements of the parents is the attitude of blaming themselves or their spouse.It was found that the parents did not explain the leukemia in the child solely based on their life experiences but that they also attributed a spiritual meaning to it. The meaning attributed by the participants to this disease was mainly an Islamic reference. The concepts of trial, warning, punishment, destiny, duty and trust came to the fore. It was observed that the parents participating in the study suffered many difficulties beginning from the first symptoms of leukemia. With the initiation of treatment, parents are faced with an unfamiliar terminology and various needs. In addition, they experienced difficulties such as financial problems, difficulties in social relations, family incompatibilities, distancing and labeling. It was determined that parents used their individual and environmental resources to cope with all these difficulties. They turn to their personal resources such as daily relaxing activities, religious activities and motivation by the presence of the child, and they are also fed by external resources such as close relatives, healthcare teams and social aid organizations.Turning to religious practices was important for parents in the process of coping with difficulties. It was found that, among religious coping activities, parents mostly used prayer. In addition to prayer, religious services like reading the Qur'an, performing salaat, and visiting mosques and tombs were supportive for them.Consequently, it was determined that religion played an important role for the participants both in making sense of the leukemia disease and in dealing with the difficulties brought by the treatment process. It is important to consider religious and spiritual elements in support activities to be offered to families from the first day of diagnosis.
Detaylı Başlık
Remisyon Sürecindeki Lösemi Tanılı Çocukların Anne-Babalarının Başa Çıkma Süreçlerinde Dinin Rolü
